Written on Wednesday 14 July 2021 at 6:54 PM

Getting out of bed is so simple an act that we do it without thinking. We might sometimes want to stay in bed a bit longer, but the act of slinging our feet off the bed and hoisting ourselves into a sitting position — we don’t give that much thought.

When I had my hernia surgery some six years ago, I realized how much we use our abdominal muscles to get out of bed, and because those muscles were terribly sore after surgery, I thought very much about getting out of bed. It was painful, and I wanted to get out of bed quickly to lessen the time my muscles burned, but the act of getting out of bed quickly made them hurt all the more. It was a lose-lose situation. The decision to get out of bed, then, was always a reluctant one.

On the other hand, every time I’ve overslept, I’ve leapt out of bed in a single motion, and it’s a conscious act: I’ve got to get out of the bed as fast as possible and into the shower as fast as possible so I can get dressed and bolt downstairs as fast as possible to grab something to shove down my throat as fast as possible so I can get to work as fast as possible.

Other than that, I rarely think about getting out of bed. The physical act is simple, effortless, and without consideration of its simple significance, a significance that doesn’t appear as such until the ability to do so disappears.

In two or three weeks my father has gone from being semi-independent (such that we could leave him alone for stretches up to eight hours) to being completely bedridden. I don’t think he’s quite come to accept that fact or even completely to understand it. There’s still hope in his mind that he will one day be walking again. I don’t think that’s the case; the doctors don’t think that’s the case; and deep down, he probably doesn’t think it’s the case. Several times a day he tries to get out of bed only for us to remind him that it’s not safe for him to get out of bed. He says things like, “I can’t wait until I get out of this bed and get back to normal.” He doesn’t realize that this new normal is just that, nor does he realize that tragically this new normal will only last for some period of time (weeks? months?) before the next dip, the next drop in his condition, the next “new normal.”

Every new normal makes the previous one look like a paradise. Every new normal reminds us all anew that no matter how trying and depressing for all of us involved, it’s only going to get more trying and more depressing. Every new normal makes the old one seem eons ago. Every new normal quickly begins to feel like it will always be normal, that it will stagnate. That it has stagnated. And then another dip. Another episode. Another new normal.

And the bed he occupies becomes his whole environment, his whole world, his prison.

How anyone could watch how this man is suffering mentally and emotionally and believe that the god he dedicated his life to, supported fiscally (so to speak), and was eternally devoted to would turn his back on him in his time of need — how anyone could think in such a situation that a god like that could exist, and if that god did exist, how it could be considered anything other than capricious and evil, I just don’t know. Belief gives hope, apologists claim. Yet it also gives despair. “What have I done to deserve this?” Dad has asked in his lucid moments. “Why won’t God do something after I’ve devoted my life to him?” Nana pleaded. For both of them, I think, it’s not a matter of “Why doesn’t God heal me so I can go back to my normal life” but something more basic: “Why is God allowing me to suffer like this instead of just letting me die peacefully in my sleep tonight? Why do I wake up day after day to this same prison?”

He remains, as far as I can tell, steadfast in his faith. “I know where I’m going” is his general demeanor, and that might give him some comfort. But I can’t help but think that perhaps that comfort is not worth the anguish it also brings.

In the meantime, we try to comfort him in those admittedly-rare moments of angst, keep him calm throughout the day, and help him take each day in his bed one moment at a time. I don’t know that there’s much more we could hope to do.