When facing troubling times, we’re always hoping we’ve reached a point where the worst of it is behind us, and we can start thinking of a return to normalcy.

When Nana went into the hospital in late 2018 after her pulmonary embolism, we all wondered when we’d reached a point where the worst was behind us. We thought it was when she came home the first time, but she had problems again and was readmitted. We thought it was when she was discharged and about to head to rehabilitation, but then she came down with shingles, which made any rehabilitation impossibly painful. It was around that time that I found myself wondering if she might never get out of that bed. In fact, she never did. I am still haunted with guilt about that period.

When the pandemic started making news in early 2020 and then everything shut down, we were thrown into that uncertain uncertainty: we didn’t even know what we didn’t know. For a while, I thought it was going to be the new normal for the foreseeable future, then I thought it was going to be the new normal for an indefinite but ever-more-stressful period of time. It wasn’t until the end of the summer and the plan to start heading back to school started to settle into place that I thought we might reach a point where we knew the worst was behind us. Death counts were dropping. Infection rates were falling. Maybe, just maybe, we’d reached a plateau.

When Papa started his decline, which was given a Parkinson’s diagnosis, we wondered when all his troubles might plateau and reach a new normal, at least for a while. We got the diagnosis, we got him on the new meds, and we got a new normal. A new Papa. Until the next decline, when it would all repeat. And then we got a new normal and a new Papa. A little less mobile. A little less cognitively present. But a plateau nonetheless. Until the next decline. The new normals were only temporary pauses in a long decline and only “normal” in the sense that someone suffering a degenerative condition like Parkinson’s could use that term.

Each scenario was — and I know this is an overused metaphor — a rollercoaster ride. A plateau means things are worsening, which means in a sense that things are better. Any day not worse than the day before is a good day in those situations. And just as rollercoasters can dizzy us and sicken our stomachs, the stress of chronic illness can do that to everyone around the sufferer. Everyone just wants the ups and downs, the flips and twists, to stop for just long enough (at least) for us to get our bearings and then catch our breath. We want to take a break from mysterious words like gastroenteritis and leukocytoclastic vasculitis, none more than the poor kid suffering from it. We want to know that the worst is behind us, that there’s hope that within some days, weeks, or (at worst) months, we’ll be back to normal. Our old normal.